SFC Brain Imaging Research Centre

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SFC Brain Imaging Research Centre
Data Management in Brain Imaging
TREVOR CARPENTER trevor.carpenter_at_ed.ac.uk
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Overview

• SBIRC SINAPSE
• Regulatory Framework
• Project Data
• Current Practice
• Current Developments

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SBIRC

• SFC Brain Imaging Research Centre
• Situated at WGH
• 12,000 subjects studied in 11 yrs
• Provides Imaging and technical support for
  studies in
• Psychiatry
• Psychology
• Stroke
• Oncology
• WE ALSO DO OUR OWN RESEARCH!

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SINAPSE

• SINAPSE
• Consortium of six Scottish universities
• Collaborative research in Brain Imaging
• Support and connections to CRNs
• Data distribution, storage and cataloguing
• Second phase to provide processing and
  applications

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SBIRC SINAPSE

• Who do we acquire imaging from
• NHS Patients
• Service provision to NHS
• NHS Patients in Research studies
• Volunteers

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Regulatory Framework

• Data Protection Act
• Personal data should not be held longer than
  necessary
• Cannot be reused
• RD Ethics Committee
• Time frame should be placed upon retention
  period
• Cannot be reused
• MRHA
• Data should be retained

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Project Data
COMMUNITY RESOURCE
ARCHIVE
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Project Data

• Raw Data
• Usually in standard format (DICOM, e-Prime)
• Processed Data
• Various formats (often excel, word)
• Varies from project to project
• Software
• Often closed source
• No version control

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Current Practice

• Raw Data
• Archived on CD / Tape - NAS
• Processed Data
• Responsibility of PI
• Software
• Version control available
• poor uptake
• Not centrally available
• Not open source

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Future Developments

• SOPs to cover archiving of project data
• Including
• Creation of data dictionaries
• Documenting analysis procedures
• Specifying preferred data formats
• BUT.
• not popular does not publish papers (RAE)!
• HOWEVER.
• Some data is very valuable and should be
  captured
• (LBC 1936, 1921 Cohort)

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