Aiming High for Disabled Children in Rutland

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Aiming High for Disabled Children in Rutland

• 2009-11

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The National vision behind Aiming High for
Disabled Children is for all families with
disabled children to have the support they need
to live ordinary family lives, as a matter of
course Give disabled children, young people
and their families more of a say in their local
services. Make sure disabled young people have
better support as they grow older. Give
parents and carers the right support at the right
time. Give disabled children, young people and
their families more chances to talk about what
they want and need.
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Transformation

• Our ambition in Rutland is that
• Disabled children will have the same
  opportunities to develop and fulfil their
  potential as all other children.
• Families with disabled children will get the
  support they need, when they need it.
• All childrens services will be more genuinely
  inclusive of disabled children, including those
  with complex needs.

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Short Breaks

• Two clear aspects of the transformation agenda
• The development of a co-ordinated and
  sufficient short breaks
• Transforming Service delivery
• Short breaks range from
• Supporting disabled children and young people to
  access universal leisure time services through to
  providing specialist services at a local and
  regional level.
• Includes foster carers, childminders,
  inclusion in youth services, leisure services,
  after school clubs and extended school
  services
• Although broad in remit there are 5 particularly
  vulnerable groups identified
• Children with ASD
• Children with complex health needs
• Children aged 11 with physical impairments
• Children with challenging behaviour
• Severely disabled young people 14

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Rutland Context

• Approx 120 children with complex needs in Rutland
  
• Rural settings a challenge
• Children in out of county schools How to make
  sure services are available for them in Rutland

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• What has happened so far
• Government appointed Together for Disabled
  Children (TDC).Advisor working with County
  Council and PCT.
• Locally the Disabled children and Families
  Partnership Group (formally SEN Disability sub
  group -multi agency and includes parents rep)
  overseeing progress.
• April 2010 need to be ready to deliver increased
  and changed service provision and support.
• Completed the readiness criteria.
• Start of mapping existing services.
• Identifying gaps.
• Where are the new opportunities.
• Discussions with partners e.g. Youth services,
  leisure services, voluntary and private sector.
• Consultation with children, young people, parents
  and carers
• Start of the process, not a one off.

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What parents and young people in Rutland say they
want

• Information
• Information- what is available/ what are we
  entitled to? And how do Parents and children find
  out?
• Use simple language in literature. consultation
  and feedback
• Make information on short breaks available as
  soon as need is apparent.
• Support at out of school activities
• Training of staff training/ availability.
• Able to access community activities without
  parents staying.
• To have a pool of trained support workers to
  help access mainstream clubs including scouts,
  martial arts etc. including higher functioning
  autism/aspergers (therefore, no requirement to
  start new clubs up) - Child needs to be with
  someone they know well using service.

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What parents and young people in Rutland say they
want

• Childcare
• Childcare needed realistic hours i.e. until 6pm
• Emergency care/ after school informal
  babysitting service
• Developing childcare/ extended services to meet
  the needs of disabled children and families
• Parents have also said that
• Feel able to spend time with siblings
• Be confident in the provision for short breaks
  issues around being safe addressed
• holiday play schemes equipped with staff to
  support child to oversee safety and that child
  gets maximum benefit from setting

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Core Offer

• Identify resources
• Undertake needs analysis
• Identify gaps priorities
• Draw up transparent eligibility criteria
• Promote/ provide information
• Promote positive experiences by promoting
  friendships, encouraging new and social
  activities,
• Ensure culturally appropriate and provided when
  families/ children need breaks
• Ensure value for money

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• What will happen next?
• A full service core offer will be agreed locally
• Priority areas are specified and will need to be
  developed
• Further emphasis on early support and universal
  services
• Not a wish list but creative, innovative ideas
  about what is required
• How can existing services be improved or made
  more easily accessible