Barriers to research participation

1
Barriers to research participation

• Diagnosis of Depression in People with
  Intellectual Disability
• Jennifer Galea Teresa Iacono
• Centre for Developmental Disability Health
  Victoria
• Monash University

2
Beyond Blue

• Diagnosis of depression in people with
  intellectual disability
• Increase direct support worker and GP awareness
  of depression in adults with intellectual
  disability
• Provide a tool that will help direct support
  workers to gather information needed by the GP
• Assist GPs in identification and treatment of
  depression

3
Tasks

• Complex project requires wading through complex
  explanatory statements
• Obtaining proxy consent sometimes difficult
• Supervisors permission required in order to
  participate
• Completion of detailed forms

4
Collaboration

• Liaising with GP sometimes problematic
• Quality of interaction dependent upon previous
  relationship
• Experiences of Shooting the messenger
• Communicating with other staff members and
  professionals

5
Practical issues

• Getting clients to assessments
• Staffing issues/backfill
• Casual staff attending appointments
• Assumptions that support workers have a detailed
  client history
• Relationship with family/significant others

6
The Report

• Understanding it
• Following through on recommendations
• Service gaps
• - BIST waiting list
• - Lack of local services
• Missing information
• Knowledge of limitations of the study
• - Crisis point
• -What happens beyond the assessment?

7
Value of Assessment?

• Will other practitioners use information?
• Will it help you argue for services/extra
  funding?
• Is it difficult to follow up on recommendations?
• Providing evidence for what support workers
  already know?
• Case for diverting resources to particular areas?

8
How do Direct Support Workers Benefit from Being
in the Study?

• Access to a service at least for an assessment
• Strategy for collecting information that will be
  needed by the GP
• Information about their client with intellectual
  disability increased understanding about
  behaviours, symptoms etc.
• Acknowledgement of difficulties faced (?)
• Recommendations about what can be done and
  potential services (?)
• Others ..

9
Further Information

• For more information about this study contact
  Jenny on 9567 1522 or at Jennifer.Galea_at_med.monash
  .edu.au
• For further information about the CDDHV visit our
  web site
• cddh.med.monash.edu.au