GFCF Diets

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GFCF Diets School The Federal Law
Tami Giles Autism One 2007
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Daily school lunch prep- Is this your kitchen?
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What are you spending?

• Juice box 1.00
• 1 Ener-g foods hot dog bun 1.28 (4-pack for
  5.15)
• 1 organic hot dog .56 (8 pack 4.50)
• 3 organic gf-cf cookies 1.00
• Organic fruits vegetables
• Final cost? About 5.00?

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What else ?

• The time you spend daily
• Extra Shopping trips
• extra time cooking and preparing
• Trying to create creative lunches
• How to transport lunches to school?

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Research?

• In research it has been shown that 91 of
  children with ASD show inflammation responses in
  the brain to gluten, casein and soy
• ref author Harumi Jyonouchi, Univ of MN
• published Neuropsychobiology 2002467684
• Innate Immunity Associated with Inflammatory
  Responses and Cytokine Production against Common
  Dietary Proteins in Patients with Autism Spectrum
  Disorder

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ARI PARENT SURVEY

• Top rated treatments for autism - from 25,500
  parents- got better
• SCD diet 66
• GF-CF diet 65
• Food allergy treatment 62
• Digestive enzymes 57
• Feingold diet 55

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Your child requires a special diet Whats The
Solution?
You have the legal right to have your childs
school prepare your child a lunch.
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What does the law say?

• The U.S. Department of Agriculture's (USDA)
  nondiscrimination regulation (7 CFR 15b), and the
  regulations governing the National School Lunch
  Program and School Breakfast Program
• A child with a disability must be provided
  substitutions in foods
• when that need is supported by a statement
  signed by a licensed physician

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What does IDEA say?

• Under IDEA, a "free appropriate public education"
  means special education and related services at
  no cost to parents
• School lunches are included in IDEA, Section 504
  -Lunches are a related service

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So whos eligible?

• Any child, age 3 to 21 who is.
• enrolled in public school
• or is enrolled in a private school that receives
  federal funding for nutrition programs
• and has a disability that prevents the child from
  eating meals prepared for the general school
  population.
• and that need is certified by a licensed
  physician.

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What is a disability under the law?
Under Section 504 of the Rehabilitation Act of
1973, and the Americans with Disabilities Act
(ADA) of 1990, a "person with a disability" means
any person who has a physical or mental
impairment which substantially limits one or more
major life activities, has a record of such an
impairment, or is regarded as having such an
impairment.
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• Individuals with Disabilities Education Act
• The Individuals with Disabilities Education Act
  (IDEA), through the Part
• B Program, provides Federal funds to assist
  States and school districts in
• making a "free appropriate public education"
  available to eligible
• children with specified disabilities residing
  within the State.
• Students with specified physical, mental,
  emotional or sensory
• impairments that need special education and
  related services are eligible
• for services under IDEA, at no cost to parents.
• Services which may be funded through IDEA
  include
• purchase of special foods, supplements, or
  feeding equipment
• consultation services of a registered dietitian
  or nutrition professional and
• (3) assistance of a special education teacher,
  occupational therapist or
• other health professional in feeding the child or
  developing feeding skills.
• Website address Department of Education/IDEA
  http//www.ed.gov
• (scroll down to Most Requested Items
  Disabilities Education (IDEA))

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The term child with a "disability" under Part B
of the Individuals with Disabilities Education
Act (IDEA) means a child evaluated in
accordance with IDEA as having one or more of the
recognized thirteen disability categories and
who, by reason thereof, needs special education
and related services.
AUTISM is one of the 13 recognized disability
categories
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So, what to document?
The FEDERAL law requires a physician document

• the child's disability
• an explanation of why the disability restricts
  the child's diet
• the major life activity affected by the
  disability
• the food or foods to be omitted from the child's
  diet
• the food or choice of foods that must be
  substituted.

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What about the IEP?

• All information on the childs special diet must
  be documented and included as a part of the IEP.
• Special dietary needs are related services
  under IDEA.
• Document, document, document.
• be sure the dietary information and physicians
  letter is included in and attached to the IEP.

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What are the responsibilities of the School food
service?

• School food service staff must make food
  substitutions or modifications for students with
  disabilities when prescribed by a licensed
  physician.
• Under no circumstances are school food service
  staff to revise or change a diet prescription or
  medical order.
• for additional help, they can refer to the USDAs
  basic guidelines on meal substitutions and
  accessibility FNS Instruction 783-2, Revision
  2, Meal Substitutions for Medical or Other
  Special Dietary Reasons, in Appendix A.

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School Liability
All recommendations for accommodations or changes
to existing diet orders MUST BE DOCUMENTED IN
WRITING to protect the school and minimize
misunderstandings. NOTE The diet orders do not
need to be renewed on a yearly basis (schools are
encouraged, however, to ensure that the diet
orders reflect the current dietary needs of the
child).
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What you should know, and what to do, before
approaching your school
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Know the law and the rules

• School food service is required to offer special
  meals, at no additional cost, to children whose
  disability restricts their diet as defined in
  USDAs nondiscrimination regulations, 7 CFR Part
  15b

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Know the law and the rules
2. You must have proper documentation from a
physician.
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Know the law and the rules
What does that mean?
3. The school food service is required to provide
meal services to children with disabilities when
the meal service is normally available to the
general student body.

• It means, if your school lunch orders lunch for
  all of the children, then your child can get a
  special lunch made for them.
• Additionally, if your school offers breakfast,
  then your child can have their breakfast made for
  them, as well.

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How about food texture modifications?
Yes, but documentation must be supplied from a
licensed physician
example child has oral motor coordination issues
and choked easily on chips, so doctor specified
no crunchy foods.
School food service staff MUST follow the
instructions that have been prescribed by the
licensed physician
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So, whats all of this going to cost?
Heres the best part

• Meals MUST be served free or at a reduced price
  (a maximum of 40 cents for lunch and 30 cents for
  breakfast) to children who qualify for these
  benefits regardless of whether or not they have a
  disability.
• Schools may NOT charge children with disabilities
  or with certified special dietary needs who
  require food substitutions or modifications more
  than they charge other children for program meals
  or snacks.

Who says theres no such thing as a free lunch?
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Liability

• schools can be held liable if staff without
  sufficient training modifies a diet order
  prescribed by a licensed physician
• If school food service staff have questions about
  the diet order, the prescribed meal
  substitutions, or any other modifications that
  are required, the child's physician and/or a
  registered dietitian should be consulted.
• If the school food service director cannot obtain
  local level assistance, the State agency should
  be consulted for technical assistance.
• Under no circumstances should school food service
  staff diagnose health conditions, perform a
  nutritional assessment, prescribe nutritional
  requirements, or interpret, revise or change a
  diet order.

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Negligence
In general, negligence occurs when a person fails
to exercise the care expected of a prudent
person.
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Notes of interest
If your childs physician prescribed portion
sizes that exceed the minimum quantity
requirements set forth in the regulations, is the
school required to provide these additional
quantities?
Yes. As an example, would be a child who is very
underweight if the doctor prescribes 6 ounces
of protein per meal, the school MUST prepare that
portion
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Forms?
Are there forms for all of this?
Wellyes and no
there are forms available, if your childs
physician can provide the necessary information
on the form
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Heres an information card your school can use in
the cafeteria, but might need supplemental info
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You may also supply documentation in an alternate
format (most reccommended)

• A letter from your doctor, on their letterhead
  that includes
• All appropriate food sensitivity test results,
  such as IgG lab results.
• IgE (anaphylactic) food allergies.
• Outline all dietary restrictions, and provide
  suitable substitutions, including brands if
  necessary.

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A Sample Comprehensive Food Panel (IgG) Report
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• Food Panel Detail
• Score indicates the degree of the immune
  reaction.
• Class indicates severity of immune response/
  food sensitivity

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Sample Breakfast Menu 1
Sweetened Rice Flakes (1 Cup) Tapioca bread
toasted w/ almond Butter ½ cup Fresh fruit
Organic DairyFree Milk (8 oz)
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Sample Breakfast Menu 2
Namaste Muffin (2 Med ) Organic Pear
Fresh Pacific Rice Milk (8 oz)
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Sample Breakfast Menu 3
Organic Brown rice Grits (1/4 Cup) Cashew Butter
(2 tbl) Maple Syrup (2 tbl) Chopped Organic
Dates (1/8 Cup) Pear Nectar (4 oz) Rice Milk (8
oz)
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Sample Breakfast Menu 4

• Breakfast burrito
• Sliced nitrate free gf-cf ham
• Brown Rice Tortilla
• Scrambled egg
• Sliced Golden Delicious Apple Organic
• Rice Milk (8 oz)

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Sample Lunch Menu 1
Organic Hot Dog on Bun Organic Sweet Peas
(Canned) Fruit Choice (One of these) Fresh
Organic Whole Fruit Canned Organic Pears Organic
White Grape Juice Organic Pear Nectar GF-CF
corn free ketchup Pacific rice milk (8 oz)
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Sample Lunch Menu 2
Chicken Nuggets (Breaded, Baked) Mashed Organic
Potatoes (w/salt and organic chicken
stock) Fruit Choice (one of these) Fresh Organic
Whole Fruit Canned Organic Pears Organic White
Grape Juice Organic Pear Nectar DairyFree Milk
(8 oz)
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Sample Lunch Menu 3
Chicken Soup with Rice Homemade Organic
Stock Organic Carrots, Broccoli, Lentils,
Onion Dark Meat Chicken (Organic) Sunflower
Oil Salt Fruit Choice (one of these) Fresh
Organic Whole Fruit Canned Organic Pears Organic
White Grape Juice Organic Pear Nectar Rice Milk
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Sample Lunch Menu 4
Chicken Sauté Organic Dark meat Chicken ,
Broccoli Florettes, Carrot, Onion, Sunflower Oil,
Salt Served over brown Rice Pasta Fruit Choice
(one of these) Fresh Organic Whole Fruit Canned
Organic Pears Organic White Grape Juice Organic
Pear Nectar DairyFree Milk (8 oz)
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Need more help?

• See USDA -FNS Instruction 783-2, Revision 2,
  Meal Substitutions for Medical or Other Special
  Dietary Reasons.
• Or, contact me
• Tami Giles
• AutismHelp4WA_at_comcast.net
• website www.autismrecoverywa.org
• ?Also available on ARIs website Autism.org
• (look under Frequently Asked Questions)

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Just for fluffsectionHeres some of my
creations..
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Bunny Cakes?
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Hot Pockets?
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Cheese sauce?
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Mini Pizzas?
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Dessert anyone ?
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Cookies for the Cause

• Currently Sold thru
• Kirkman labs
• NAA store