Washington Group on Disability Statistics: extended sets

1
Washington Group on Disability Statistics
extended sets

• Marijke W. de Kleijn de Vrankrijker
• WHO-FIC Collaborating Centre
• The Netherlands

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Outline

• Objectives of WG and task of group 3
• Purpose of short set and extended sets
• Content of extended set 1 and 2 related to short
  set
• Content of proposed set 1
• Testing questions related to proposed set 1
• Content of extended set 2

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WG objectives

• Develop a small set/s of general disability
  measures
• Recommend extended set/s of items to measure
  disability as components of population surveys
• Address methodological issues associated with
  disability measurement

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Purpose short set

• Purpose for international comparability of
  disability measures/data
• Highest priority given to assessing equalization
  of opportunities
• Partially fulfills purpose of monitoring
  limitations in functioning in the population

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Purpose extended sets

• Should be same as short set
• International comparability
• Equalization of opportunities
• Monitoring functioning and disability in
  population
• This means inclusion of all ICF components
• Body function/structure, impairments
• Activity, limitations
• Participation, restrictions
• Environmental factors, barriers/facilitators

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Short set

• Response categories No, some, a lot, cannot do
  at all
• Do you have difficulty seeing even if wearing
  glasses?
• Do you have difficulty hearing even if using a
  hearing aid?
• Do you have difficulty walking or climbing steps?
• Do you have difficulty remembering or
  concentrating?
• Do you have difficulty with (self-care such as)
  washing all over or dressing?
• Because of a physical, mental, or emotional
  health condition, do you have difficulty
  communicating (for example understanding others
  or others understanding you?

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Content of extended sets

• Bangkok meeting
• Set 1
• functions and basic activities
• related to current 6 domains of short set
  additional functions and basic activities
• Set 2
• other activities,
• participation and
• environment

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Short sets vs extended sets
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Testing of short set

• Use of extended set(s)
• Recommended to use existing instruments first
  extended set?

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First extended set

• First proposal to group 3
• WHS-8
• WHO-DAS-12

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First extended set

• After comments from group members, proposal
• WHS-17
• WHO-DAS-12
• Speech question
• Total 30 questions

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WHS-17 items

• Sleep
• Feeling sad
• Anxiety
• Seeing/recognizing a person
• Seeing/recognizing object, reading
• Hearing someone
• Hearing conversation
• Aches/pain
• Bodily discomfort

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WHS-17 items (2)

• Shortness of breath at rest
• Shortness of breath mild exercise
• Coughing
• Appearance deformed
• Skin defects
• Defecation
• Urinating
• Using hands/fingers

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WHO-DAS-12

• Concentrating doing
• Emotially affected
• Learning new tasks
• Standing
• Walking long distance
• Washing whole body

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WHO-DAS-12 items (2)

• Getting dressed
• Household responsibilities
• Dealing with people
• Friendship
• Day-to-day activities (work/school)
• Community activities

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UNESCAP pilot studies

• Pilot studies UNESCAP region
• We have to use the experiences from those pilots
• Questionnaire including
• WG short set
• WHS-17
• WHO-DAS-36
• 4 questions on met/unmet needs for assistance

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Testing short set

• Group 2 selected questions for testing the short
  set from
• WHS
• WHO-DAS
• SF-36 mental component
• Total 27 questions

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Items mapped to ICF

• Short set
• WHS-8
• WHS-17
• WHO-DAS-12
• Eurostat health module
• Test questions
• Mapped to ICF see matrix

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Second extended set

• Based on analysis of existing national survey
  questionnaires
• Common questions/areas and missing areas compared
  to ICF
• Next presentation Margie Schneider and Marijke de
  Kleijn

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Testing general set

• Testing general set 2005
• Including extended questions (which?)

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Dank voor uw aandacht

• Marijke.de.kleijn_at_rivm.nl
• www.rivm.nl/who-fic