European Breast Cancer Advocacy

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European Breast Cancer Advocacy
Susan Knox, Executive Director EUROPA DONNA
The European Breast Cancer Coalition
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EUROPA DONNA Member Countries

• Monaco
• The Netherlands
• Poland
• Portugal
• Russia
• Slovenia
• Spain
• Sweden
• Switzerland
• Turkey
• UK
• Ukraine
• Yugoslavia

• Austria
• Belgium
• Croatia
• Cyprus
• Czech Republic
• Denmark
• Estonia
• France
• Germany
• Greece
• Hungary
• Ireland
• Israel
• Italy
• Lithuania
• Luxembourg

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EUROPA DONNA Ten Goals

• To promote the dissemination and exchange of
  factual, up-to-date information on breast cancer
  throughout Europe
• To promote breast awareness
• To emphasise the need for appropriate screening
  and early detection
• To campaign for the provision of optimum
  treatment
• To ensure provision of quality supportive care
  throughout and after treatment
• To advocate appropriate training for health
  professionals
• To acknowledge good practice and promote its
  development
• To demand regular quality assessment of medical
  equipment
• To ensure that all women understand fully any
  proposed treatment options, including entry into
  clinical trials and their right to a second
  opinion
• To promote the advancement of breast cancer
  research

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• Ensure that all European Women have Access to
  Accurate Information and Quality Screening,
  Diagnosis and Treatment

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• Lobbying Activities
• Information
• Education

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Lobbying Activities

• European
• European Health Forum
• European Patients Forum
• European Parliamentary Group on Breast Cancer
  (EPGBC)
• Public Hearing on Breast Cancer

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Lobbying Activities

• National
• All Party Parliamentary Groups
• Individual Country Initiatives

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Information

• Website
• Newsletter
• Media Events
• Booklets clinical trials and breast health
  passport

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Education

• EUROPA DONNA Pan European Conferences
• Advocacy/Communication Skills
• Training Course

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Pan European ConferenceMilan 2001
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Advocacy Training
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Education

• Co-organiser of European Breast Cancer
  Conferences with EORTC(European
  Organisation Research Treatment of Cancer)
  
  EUSOMA(European Society of Mastology)
• Collaboration with other organisations (European
  Breast Cancer Network, Breast International
  Group, European School of Oncology )

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