Title: CFSME: OUT ON THE STREETS
1CFS/MEOUTON THE STREETS!
- JOIN THE INTERNATIONAL CFS/ME PATIENTS MOVEMENT
2This is our CFS/ME activismstory from Barcelona,
Spain
- In January 2006, the Autonomous Regional
Goverment of Catalonia (population 6 million),
Spain, put out a plan for patients with CFS/ME or
Fibromialgia (FM) that would force us to only
access Primary Health Care and keep us from
seeing specialists (this added to the fact that
there is only one CFS Unit in Spain with a 2 year
waiting list).
3Why did the goverment do this?
- Simple enough they knew that, as PHC doctors are
not trained to diagnose and treat CFS/ME or FM,
their reports would be useless to allow us to
apply for a disability pension. (They think we
can live on nothing.) This would put us both in a
legal and health care services LIMBO. Which is
why we, the patients, called this goverment plan
4THE GUANTANAMO PLAN
5As we felt trapped like Guantanamo prisoners, we
decided to make orange ourcolour
6We hit the streets any way we could wheelchairs,
canes, chartered buses
7We gathered in front of the Health Department
with our signs and our whistles.
8Of course, not all of us did make it there
I represent 4 people, the other 3 are in bed.
9We drew bodies and wrote in them the number of
people with CFS thatwere not able to get out of
bed
10For some, it was too late
In memory of those with CFS who
have committed suicide.
11The goverment officials came out to try to
reason with us. But THEY lacked reason.
12We even got support from far away
Dr.Nancy Klimas, president of the IACFS
13After that we spent a month in bed. But it was
worth it!
14We made all the national press!
- Tell us what you are doing in your area
- for CFS-ME rights.
- Lets join our forces together!
- www.ligasfc.org
- info_at_ligasfc.org
- (Barcelona, Spain)