Genetic Alliance

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http//www.geneticalliance.org/
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About Us
Genetic Alliance is the worlds leading nonprofit
health advocacy organization committed to
transforming health through genetics and
promoting an environment of openness centered on
the health of individuals, families, and
communities. Genetic Alliances network includes
more than 1,000 disease-specific advocacy
organizations, as well as thousands of
universities, private companies, government
agencies, and public policy organizations. The
network is a dynamic and growing open space for
shared resources, creative tools, and innovative
programs. Over the past 25 years, Genetic
Alliance has been the voice of advocacy in
genetics. Advocacy in the 21st century, however,
requires new definitions and new focus. We
dissolve boundaries to foster dialogue that
includes the perspectives of all stakeholders
from industry professionals, researchers,
healthcare providers, and public policy leaders
to individuals, families, and communities. In a
rapidly changing world, Genetic Alliance
understands that nothing short of the
transformation of our mission, goals, and even
our Board of Directors will suffice to transform
health.
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Programs

• Genetic Alliance has developed a series of
  programs designed to increase the visibility of
  genetics and advocacy, establish strong networks
  and advance important campaigns, including
  community based family history. Our current
  programs include

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Resources and Services

• Genetic Alliance provides a range of resources
  and services that benefit both individuals and
  organizations. We welcome and encourage your
  involvement listen to webinars, create and edit
  entries in WikiGenetics and WikiAdvocacy,
  participate in the Advocates Partnership Program,
  add your organization to Disease Info Search, and
  more.
• Individuals and organizations can utilize our
  resources to
• Stay Informed
• Engage and Participate
• Some of our resources are tailored specifically
  for organizations.
• We also have a Community Job Board where
  organizations can post job openings and
  individuals can find new and exciting
  opportunities for employment.

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Resource Repository

• Genetic Alliance Resource Repository is a robust
  document repository service that aggregates the
  combined resources of advocates, healthcare
  professionals, government agencies, think tanks,
  and other contributors. These resources cover a
  wide range of topics such as
• You can visit the Resource Repository at
  www.resourcerepository.org
• Resource Repository Search
• The Resource Repository is a digital commons for
  the global health community. This electronic
  collection of documents, links, audio, and video
  files, relies on contributions from the community
  in topic areas such as newborn screening, family
  health history, genetic testing, reimbursement,
  research, drug development, community engagement,
  and organizational development.

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Publications

• Genetic Alliance publications are aimed at
  emerging and experienced advocacy leaders,
  researchers, healthcare providers, and
  policymakers. All of our publications are
  available for free downloading and posting, as
  long as Genetic Alliance is credited as the
  author and the content is not modified in any
  way. Printing of publications is allowable for
  individual use only.

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Upcoming Events

Registry and Bio bank Boot Camp
Registries and Natural History Studies Salon
May 17, 2012, 400 p.m. - 600 p.m. EDT Genetic
Alliance4301 Connecticut Avenue, NW Suite 404
Washington, DC 20008
May 15, 2012, 900 a.m. - 400 p.m. EDT Genetic
Alliance4301 Connecticut Avenue, NW Suite 404
Washington, DC 20008
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• Thank You !