EC Network of Excellence

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EC Network of Excellence
SAFE Special Advances in Fetal and Neonatal
Evaluation Network maj.hulten_at_warwick.ac.uk
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SAFE EC-funded NoE   Special Non-Invasive
Advances in Foetal and Neonatal Evaluation
Network    EC FP6 Programme PRIORITY
1.1.1.2.2-1 Non-invasive diagnostics diagnostic
procedures development of markers for ante-
neo-natal screening    Key mission Implement
routine non-invasive prenatal diagnosis and cost
effective neonatal screening across the European
Union through the forging of long-term
partnerships
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SAFE NETWORK
12 mill for 5 years 55 partners in 18 countries
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Rapid and simple NIPDcounteract

• Amnio/CVS and delayed diagnosis
• significant risk of induced abortion
• discomfort
• psychological distress

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(No Transcript)
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Key ObjectivesSocial sciences

• Research/Integration/Spreading of Excellence
• Socio-economics/Psycho-sociology/Ethics

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Physicians communication Risks
probabilities
Tests decision-making pregnant women / partners
Improvement probability Information understand
ing
Understanding risk information Delayed onset
of disease
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• Areas
• RHD genotyping
• Haemoglobinopathies
• Pregnancy related disorders
• pre-eclampsia
• pre-term labour
• - Chromosome disorders

• Methodology
• Literature review
• Questionnaires
• Key international stakeholders
• Clinicians
• Citizens
• Health care providers
• Industry /Academics

Internet Forum
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What do pregnant women/partners know before
giving consent to tests? Develop improved
information
What are the ethical guidelines attitudes
practices of fetal sexing? Developed /
developing countries
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ADVISORY BOARD
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PARTNERS
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PARTNERS
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PARTNERS