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Title: BORE DA - GOOD MORNING


1
BORE DA - GOOD MORNING
2
FACTS AND MYTHS ABOUT MENTAL ILLNESS Jayne
Anderson / Bleddyn Lewis
3
Facts and Myths about Mental Illness
  • 1.Mental health problems only happen to other
    people
  • Fact 1 in 4 of the adult population will suffer
    from mental health problems in any one year, and
    one in six experiences this at any given time. -
    The Office for National Statistics Psychiatric
    Morbidity report (2001). It is estimated that
    approximately 450 million people worldwide have a
    mental health problem- World Health Organisation
    (2001)
  • 2. People with mental illness are violent and
    dangerous
  • The risk of being killed by a stranger with a
    severe mental health problem is roughly
    110,000,000, about the same probability as being
    hit by lightning. The number of homicides by
    people with schizophrenia is around 30 per year.
    This is 5 of all homicides, the prevalence of
    schizophrenia in the population being 1 or less
    Avoidable Deaths, Five year report of the
    national confidential inquiry into suicide and
    homicide by people with mental illness (December
    2006).

4
Facts and Myths about Mental Illness
  • 3. People with mental illness are poor and/or
    less intelligent
  • Mental illness, like physical illness, can affect
    anyone regardless of intelligence, social class
    or income level. Celebrities such as Stephen Fry,
    Nick Drake, Paula Yates, Kurt Cobain, Virginia
    Woolfe, Brooke Shields and Winston Churchill have
    all experienced mental illness.
  • 4. People who self-harm are attention-seekers
  • This is untrue. Most people who self-harm do it
    in secret and its only when they need to seek
    medical attention, that they come to the
    attention of others

5
Facts and Myths about Mental Illness
  • 5. People with poor mental health are weird
  • Everyone suffers from low mood and 1 in 4 of the
    population will experience mental ill health at
    some point in their lives. Think of 12 people you
    know. Are 3 of them rocking in the corner
    muttering to themselves? Thought not.
  • 6. Mental illness is caused by emotional weakness
  • People do not choose to become mentally ill. As
    with other medical conditions, like heart disease
    or diabetes, it has nothing to do with being weak
    or lacking will-power.

6
Facts and Myths about Mental Illness
  • 7. Once youve had a mental illness, you never
    recover
  • People can and do recover from mental illness.
    Medications, psychological interventions, a
    strong support network and alternative therapy
    treatments from cognitive behavioural therapy to
    improved diet and exercise habits are also very
    effective in leading to a complete recovery
  • 8. Since care in the community was started,
    people with mental health problems have been left
    to roam the streets
  • Even before the closure of the old large scale
    psychiatric hospitals, around 95 of people
    received care and treatment for mental illnesses
    in the community. What has changed is the type of
    accommodation and treatment available. For
    example, people requiring long term care in a
    hospital are usually no longer in the same
    building as those requiring short term
    admissions.

7
Facts and Myths about Mental Illness
  • 9. All people who suffer from depression are
    suicidal
  • Suicide is not a mental illness. Not everyone who
    is depressed will consider suicide. It is as
    inaccurate as saying that all football fans are
    hooligans. However it is true to say that
    individuals experiencing a mental health problem
    are, generally, associated with a higher risk of
    suicide. If you suspect someone is feeling
    suicidal ask them it could help save their
    lives.
  • 10. If I seek help for my mental health problem,
    others will think I am "crazy"
  • Early treatment can assist with a faster
    recovery. If you broke your arm would you delay
    getting a cast applied incase people thought you
    were weak? Not likely!

8
Risk Factors Certain factors can indicate an
increased risk of physically violent behaviour .
The following lists are not intended to be
exhaustive and these risk factors should be
considered on an individual basis.
9
Demographic or personal history indicators
  • Evidence of recent severe stress, particularly a
    loss event or the threat of loss
  • One or more of the above in combination with any
    of the following
  • Cruelty to animals
  • reckless driving
  • History of bed wetting
  • Loss of parent before the age of 8 years D(GPP)
  • History of disturbed / violent behaviours
  • History of misuse of substances or alcohol
  • Carers reporting service users previous anger or
    violent feelings
  • Previous expression of intent to harm others
  • Evidence of rootlessness or social restlessness
  • Previous use of weapons
  • Previous established dangerous acts
  • Severity of previous acts
  • Known personal trigger factors

10
Clinical variables
  • Misuse of substances and / or alcohol
  • Drug effects (disinhibition, alcathisia)
  • Active symptoms of schizophrenia or mania in
    particular
  • Delusions or hallucinations focused on a
    particular person
  • Command hallucinations
  • Preoccupation with violent fantasy
  • Delusions of control (especially with a violent
    theme)
  • Agitation, excitement, overt hostility or
    suspiciousness
  • Poor collaboration with suggested treatments
  • Antisocial, explosive or impulsive personality
    traits or disorder
  • Organic dysfunction D(GPP)

11
Situational variables
  • Extent of social support
  • Immediate availability of potential weapon
  • Relationship to potential victim (for example,
    difficulties in relationship are known)
  • Access to potential victim
  • Limit setting (for example, staff members setting
    parameters for activities, choices, etc.)
  • Staff attitudes D(GPP)

12
ReferenceViolence - The short-term management
ofdisturbed/violent behaviour inpsychiatric
in-patient settingsand emergency
departmentsNICE 2005
13
These were just a few of the most common
misconceptions surrounding mental health and
mental illness.
Unfortunately, there are many more!
14
WHAT AFFECTS MENTAL HEALTH AND WELLBEING ?
15
  • There is now a considerable amount of evidence
    about the factors that promote and protect mental
    health and wellbeing and those which are
    associated with risk of poor mental health.
  • Improve Your Mental Health No matter how old or
    young you may be, mental health is there in
    everyday life in how we think and how we feel,
    how we react to others and how we are with
    ourselves. We all need to look after it, just as
    we do with our physical health.

16
Top Tips for Positive Mental Health
  • Staying mentally healthy isn't just about
    treating illness far from it! There are lots of
    things we can do to help prevent ourselves
    getting ill in the first place, and plenty more
    we can try if we (or those around us) do
    encounter problems.
  • So, to get you started, we've put together these
    Top Tips for Positive Mental Health. Don't keep
    them under your hat either tell your family,
    friends and colleagues. Everyone should know this
    stuff!

17
Top Tips
  • Talk about your feelings
  • Write it down
  • Keep active
  • Eat well
  • Sleep well
  • Drink sensibly
  • Keep in touch with friends and loved ones
  • Get the knowledge, take control
  • Get professional help
  • Look beyond drug therapies
  • Change the scene
  • Time for another cuppa?
  • Hold that thought
  • Go for green
  • Let there be light
  • Listen up!
  • Improve your coping skills
  • Set realistic goals
  • Keep an eye on personal stress
  • Three good things...
  • Get involved
  • The long way
  • Find a hobby
  • Do good
  • Ask for help
  • http//www.wellscotland.info/top-tips.html

18
MEDIA ENTERTAINMENT OR INFORMATION HHOW
BALANCED IS THIS?
19
Media Entertainment or Information How
balanced is this?
  • Some programmes and media outlets are seen as
    being significantly more helpful than others. In
    a surveys regional newspapers, regional TV news
    and regional radio news programmes were all felt
    to be fairer or more mixed in their coverage than
    national media.
  • The Big Issue, The Guardian and EastEnders were
    all highlighted as fair and balanced reporters of
    mental health issues.
  • Sue Baker of Mind said "Really, it is tabloid
    coverage which gives us most cause for concern.
    They are looking for snappy headlines which will
    sell papers and they inevitably go for 'psycho'
    angles.

20
Bonkers Bruno Locked Up
On Tuesday 23 September 2003, The Sun published
the offensive headline "Bonkers Bruno Locked Up".
For later editions, this was toned down to "Sad
Bruno in mental home". The coverage was roundly
condemned by the main groups in the mental health
field. At SANE, chief executive Marjorie Wallace
said it was "ignorant reporting" and that "it did
both the media and the public a huge
disservice".
21
Brit, dont end up like your Gran
THE life of troubled BRITNEY SPEARS appears to be
unravelling before the eyes of the world. On the
surface it seems the pressures of fame have
pushed the former Pop Princess to the brink. But
today The Sun can reveal that the seeds of the
stars dramatic downfall may well have been sown
in her troubled childhood. The demons of
suicide, mental and emotional instability,
addiction, homelessness and violence all lurk
within the multi-millionairesss dark past. Even
her great-uncle, Earnest, has said of Britney
She didnt have a hope of turning out normal.
In a chilling parallel to her situation, The Sun
can today reveal that Britneys own GRANDMOTHER
committed suicide aged just 31, after her baby
son died. And some fear sad Britneys own sad
life could come to a tragic end, just like her
poor grandmothers.
22
I'd kick Britney off the bi-polar express
Britney Spears appears to be locked in a downward
spiral which, we're reliably informed, is a
result of bipolar disorder. Strangely enough
Kerry Katona is also a sufferer. This,
apparently, accounts for the way these young
mothers end up in desperate domestic brawls
splashed all over the front pages. The path to
self-destruction is not, as we might have
imagined, due to an excess of mind-bending drugs,
alcohol or general self-indulgence, but in
Britney and Kerry's case, the mental disorder,
bipolar. So much sexier and hip than manic
depression - as it was called until it became
trendy.
23
KNIFE THREAT TO COPS
Addict slashes own throat after police zap him
with Taser. A mental patient slit his own throat
after being shot by police with a 50,000-volt
Taser. Disturbed Justin Perry suffered massive
blood loss which led to a heart attack and he
died despite efforts to save him. The drama
happened after officers rushed to the home of
crack addict Perry when he threatened to kill his
mum June.
24
'Gascoigne thought aliens were coming to abduct
him'
Paul Gascoigne, pictured here in 2006, has been
arrested and sectioned after his allegedly
menacing behaviour at the Malmaison hotel in
Gateshead. He became wired and unpredictable and
would flip and turn violent over nothing. He was
uncontrollable.
25
A more balanced approach?
26
  • Rethink calls for urgent national attention to
    prevent another Taylor tragedy
  • 14 December 2007
  • Spokesperson for Taylor family says they are
    vindicated but destroyed
  • Mental health charity Rethink today (December 14)
    called for national action to prevent the
    catalogue of failings that led to Garry Taylor
    killing his friend.

27
  • Rethink call for action on report from the
    Disability Rights Commission
  • 27 September 2007
  • Leading mental health charity Rethink today
    (September 27) called for immediate government
    action to save the lives of thousands of people
    with schizophrenia after a damning report on
    health inequalities from the Disability Rights
    Commission.

28
  • NEWS RELEASE
  • Monday December 4 2006
  • OVER 50 HOMICIDES PER YEAR BY MENTAL HEALTH
    PATIENTS
  • National study finds 1 in 20 homicides committed
    by people with schizophrenia many are
    preventable.

29
Avoidable Deaths (2006)
  • Over 50 homicides are committed each year in
    England and Wales by mental health patients,
    according to a new report by the National
    Confidential Inquiry into Suicide and Homicide by
    People with Mental Illness (NCI).
  • Many follow poor recognition of risk by mental
    health services. However, the number of cases is
    not increasing, and the risk of random killings
    by mentally ill people has not risen in the last
    30 years.
  • The NCI examined all suicides and homicides by
    mental health patients over a 5-year period. Of
    the 600 homicide convictions per year in England
    and Wales, it found that 30 (5) were committed
    by people with schizophrenia, although only half
    were known patients.

30
Avoidable Deaths (2006) Cont.
  • Key findings and recommendations from the study
    on homicide (data collected from April 2000 to
    December 2003) include
  • The Inquiry investigated 249 cases of homicide by
    people with a history of mental illness 9 of
    all homicides in England and Wales during this
    period.
  • In the week prior to homicide 71 (29) patients
    were seen by services only 9 were thought to be
    of short-term moderate or high risk of violent
    behaviour.
  • Stranger homicides, i.e. random attacks on
    members of the public by people with mental
    illness, have remained at five per year
    indicating that community care has not increased
    the risk to the general public.
  • Services should ensure that high risk patients
    receive enhanced CPA, backed up by peer review in
    the most high risk cases.

31
The way forward !
  • We all have a duty to
  • KEEP AN OPEN MIND
  • BE INFORMED
  • PROMOTE GOOD MENTAL HEALTH
  • TACKLE STIGMA

32
STEPPING STONES. ONE STEP AT A TIME Richard
Jones
33
Recovery
34
A process of recovering from a mental health
problem
35
What is Mental Health?
  • The concept of madness is one which is accepted
    globally across many different cultures.
  • In modern Western culture it is viewed as an
    illness or disease.
  • Because people are viewed as ill they are
    generally relieved of their usual
    responsibilities and their support becomes the
    domain of professionals.

36
  • The mentally ill person is often seen as an
    other.
  • A distinct class of person.
  • Different and apart from normal people.
  • They become the illness that they are deemed to
    have schizophrenic, manic depressive,
    anorexic.

37
  • Is it possible to restore these people to full
    humanity when we actually fear their difference
    so much and when they themselves secretly feel
    less than human?
  • Campbell (1998)

38
The difference between the medical view and the
persons experience
  • beyond symptoms and deficits

39
The person
  • Today I wanted to die. Everything was hurting.
    My body was screaming. I saw the doctor. I said
    nothing. Now I feel terrible. Nothing seems good
    and nothing seems possible.
  • Written in a patients diary

40
The Doctor
  • Flat. Lacking in motivation, sleep and appetite
    good. Discussed aetiology. Cont. LiCarb 250mg
    qid. Levels next time.
  • Written in medical notes
  • from Repper Perkins (2003)

41
What do people want frommental health services?
42
  • Choice
  • Accessibility
  • Advocacy
  • Equal opportunities
  • Income and employment
  • Self help
  • Self organisation
  • Read (1996)

43
What do they feel are their unmet needs?
44
  • Adequate income
  • Intimacy
  • Privacy
  • Meaningful work
  • A satisfying social life
  • Happiness
  • Adequate resources
  • Warmth
  • Estroff (1993)

45
So What is recovery?
46
It is not a cure
47
A personal process of overcoming the negative
impact of a psychiatric disability despite its
continued presence.
48
It involves
  • personal development and transformation
  • acceptance of the illness
  • a sense of responsibility or control over ones
    life
  • hope
  • the support of others
  • and working collaboratively with others on
    treatment and rehabilitation.

49
What matters?
  • Are we living the life we want to be living?
  • Are we achieving our personal goals?
  • Do we have friends?
  • Do we have connections with the community?
  • Are we contributing or giving back in some way?

50
Recovery is a process, not a place.Looking at
where we want to be and what we want to achieve.
Not where we came from.
51
Recovery is about
  • recovering what was lost rights, roles,
    responsibilities, decisions, potential and
    support
  • involving people in having a personal vision of
    the life they want to live
  • discovering symptoms can be managed and doing it
  • doing more of what works and less of what doesnt
  • reclaiming the roles of a healthy person and
    not a sick person.
  • getting there.

52
What we know
  • People can and do recover.
  • Recovery is a process or a journey rather that an
    end point.
  • Recovery means much more than an absence of
    symptoms
  • Attitudes and values can have a powerful impact.
  • Recovery is a common human experience.
  • Different things help different people recover.

53
Main ingredients
  • Belief by the person experiencing mental
    illness/distress that they can and will recover
  • Belief by people supporting them
  • Commitment by the person experiencing mental
    distress to recover
  • A personal strategy for recovery
  • Resources to enable the person to recover
  • Personal growth is shared with others seeking to
    recover.

54
What people say helps them
  • Having hope.
  • A belief in change.
  • Being ready to lead their own recovery.
  • Self management and coping skills development.
  • Being optimistic yet realistic.
  • Having a chance to contribute or give back.
  • Finding meaning and purpose.
  • Supportive relationships.
  • Becoming engaged and involved.
  • Supportive and accessible services and
    treatments.
  • Patience
  • Creativity.

55
How have mental health services adapted to assist
the recovery process?
56
  • Mental Health Policy
  • The Care Programme Approach (England Wales)
  • National Service Framework (Equity, Empowerment,
    Effectiveness, Efficiency)
  • Standard 1 - social inclusion, health promotion,
    tackling stigma
  • Standard 2 - service user and carer empowerment
  • Standard 3 - promotion of opportunities for a
    normal life

57
How does this work?
58
  • The care plan does not only address health needs.
  • It must cover aspects of social care and
    functioning.
  • A psychosocial approach is used.
  • The care coordinator links in with other
    agencies, both statutory and non-statutory, to
    promote social inclusion and recovery.

59
Services should combine and
60
  • Tackle stigma and discrimination
  • Ensure advocacy services are available
  • Provide and maintain good quality housing
  • Help access educational and training
    opportunities
  • Help find supportive networks which include
    opportunities for friendship.

61
In Summary
62
  • The process of recovery is a journey traveled by
    a service user and those closest to them.
  • It encompasses all aspects of life to help
    provide a meaningful and happy life without fear
    and prejudice.
  • It does not replace the medical model of care but
    works with it.

63
  • Service users are offered a greater degree of
    input into their care.
  • They agree a care plan, and a way forward that
    suits their individual circumstances, with their
    care coordinator.
  • The people closest to them are offered a carers
    assessment and input into the service users
    care. They are recognised as key individuals to
    recovery.

64
Further information
  • Rethink - mental health charity
  • www.rethink.org
  • Julie Repper / Rachel Perkins

65

Refreshments.
66
Hassen Joomraty
67
A PERSONAL AND PROFESSIONAL VIEW OF THE
GAP Kathy Giles
68
WHY ?
  • Heads are shaking
  • People tutting
  • Yes, I am behaving strangely
  • But have they asked me WHY?
  • No-one will come near me
  • They all seem so afraid
  • Yes, I know that I am shouting
  • But no-one asks me WHY?
  • I am really hot and bothered
  • My head it hurts like hell
  • I feel disorientated
  • I want to know the reason WHY?
  • I am someones brother, sister, father, mother
  • I dont always act like this
  • I really dont feel quite myself
  • Will someone ask me WHY?
  • As children we drive adults to distraction
  • With what and where and why and when
  • Surely as adults we should not make assumptions
  • But ask the question WHY?
  • To all those who profess to care
  • Look beyond what you can see and
  • Try to find the person who is me
  • To do that, ask the question WHY?

69
A CO-ORDINATED APPROACH TO CARE Bleddyn Lewis
70
UNSCHEDULED CARE PROJECT
  • Some facts
  • About the project
  • Work we have done
  • What this means to you

71
  • Unscheduled care is defined as when someone seeks
    treatment or advice for a health problem without
    arranging to do so more than a day in advance.
  • OCaithan et al 2007

72
Some facts
  • It is estimated that up to 5 of those attending
    an Emergency Department have a primary diagnosis
    of mental ill health .
  • A further 20-30 of attendees have co-existing
    physical and psychological problems, with much of
    the latter remaining undetected.
  • In January 2004, a Department of Health audit
    suggested that up to 10 of emergency
    departments four hour breaches involved patients
    with mental ill health. In addition, a third of
    patients with mental ill health wait longer than
    four hours compared to 10 of all patients.
  • Improving the management of patients with mental
    ill health in emergency care settings. Department
    of Health Checklist 2004

73
  • People with mental health problems are
  • more likely to leave the Emergency Department
    before being seen,
  • are associated with a higher number of serious
    incidents,
  • more likely to report their experience of the
    emergency department as negative.
  • Managing urgent mental health needs in the Acute
    Trust. Academy of Medical Royal Colleges 2008.

74
  • Self-harm is one of the top five reasons for
    admission to hospital for emergency medical
    treatment, accounting for up to 170,000
    admissions in the UK each year.
  • NICE 2004
  • Over a quarter of the 682 adult service users
    surveyed in the Royal College of Psychiatrists
    Self-Harm Project (2006/07) rated staff poorly in
    terms of their attitude and understanding.
  • Mental health is a major issue for acute hospital
    inpatients, for example 60 of patients over 65
    years of age will have a mental health problem
    and such patients have higher levels of physical
    morbidity and longer lengths of stay.
  • Who Care Wins, RCPsych, 2005.

75
Core values
  • The same standard of urgent assessment, diagnosis
    and intervention should be provided for mental
    health care as is expected for physical health
    care.
  • Good management of mental health problems can
    make a significant contribution to the
    effectiveness and efficiency of acute hospitals
    and improve the outcome for patients.
  • There should not be any discrimination against an
    individual because of mental health problems.

76
Main aims
  • To develop an Integrated Care Pathway for
    unscheduled mental health assessment and
    treatment
  • To produce proposals for service development and
    improvement
  • To link in with the wider unscheduled care
    developments across the three counties
  • To provide the optimal conditions to deliver
    mental health interventions.

77
NEED FOR THE PROJECT
There were concerns about current out of hours
unscheduled care arrangements from the following
stakeholders
PATIENTS Delays in accessing Treatment. Confusi
ng procedures. Conflicting advice.
ON DUTY PSYCHIATRIST Unnecessary
assessments. Lack of skills / support. Patients
not clerked in to AE. Lack of clinical/risk
info.
AE STAFF Having to care for patients waiting
for MH assessment. Feeling under skilled. Delays
in accessing Assessment.
OUT OF HOURS GP Having to manage single
handedly until MH assessor arrives. Delays. Expo
sure to risks related to Above points.
CRHT SERVICE Poor clinical risk Information. Lack
of medical access for Joint decision making /
Prescribing.
78
BASELINE REVIEW
  • The out of hours service activities of the
    mental health services across the three counties
    of Carmarthenshire, Ceredigion and Pembrokeshire.
  • Audits
  • Questionnaires
  • Engaged widely
  • Leg work

79
FINDINGS
  • The main findings summarised
  • Unacceptable delays in accessing assessment (5
    hours).
  • Confusing procedures and conflicting advice
  • Proportion of unnecessary assessments /
    admissions
  • Lack of skills/ lack of support
  • Patients not clerked / booked / registered into
    AE
  • Concerns about contact with service being
    recorded
  • Lack of clinical or risk information

80
ISSUES
  • History taking
  • Assessment
  • Record keeping
  • Managing individuals with complex needs
  • Medical prescribing
  • Physical health examination
  • Fitness for assessment
  • Safety
  • Child Protection Legislation
  • Knowledge Application of MHA s.12 MHA Approval

81
THE AGREED PLAN
  • Implement a care pathway, assessment tool and
    comprehensive training programme-
  • Introducing a central referral point (Divisional
    screening / discussion )
  • Develop role of initial assessor
  • Assessments by CRHT , MH Practitioner based on
    acute ward
  • Divisional on-call doctor only
  • Problems resolved
  • Equity
  • Resource implications

82
MHLD
BASELINE REVIEW
BUSINESS CASE
IMPLEMENTATION PLAN
IMPLEMENTATION
EVALUATION
0CT 07
OCT 08 FEB
09
83
MULTI FUNCTIONAL MULTI DISCIPLINARY PROVISION FOR
UNSCHEDULED CARE 24 HOURS OF CARE 00.00HRS


24.00HRS
09.00 CMHT
17.00
16.30 MH PRACTITIONER
MH PRACTITIONER 08.30
08.30 CRHTT
22.00
09.00 LIAISON PRACTITIONER 17.00
INPATIENT UNITS 24HRS
84
TRAINING
  • Baseline review
  • Tender specification
  • Closing date
  • Filming _at_ WWGH
  • Launch date
  • All practitioners

85
Lunch break
86
Closing the Gap Disability Rights Commission
(2006)
87
ALL MY HEALTH NEEDS Jayne Anderson
88
All my health needs
  • Definition of the concept of health
  • A state of complete physical, mental and social
    well being and not merely an absence of disease.
    WHO (1991)

89
Policy etc.
  • Health services should adopt a holistic view of
    the assessment and development of care plans for
    mental health service users (DoH, 1990)
  • Recommendations for the physical health care of
    people with SMI (DoH, 2005,2006)
  • Guidelines for the treatment of schizophrenia in
    primary and secondary care (NICE, 2002)
  • CNOs review of mental health nursing (DoH, 2006)
  • Designed for Life, the WAGs 10 year vision for
    Health, states that there is to be a Revised
    Health Inequalities Strategy to be published in
    2009
  • Closing the Gap (DRC Report, 2006)

90
Six key priorities for health improvement
  • Tackling health inequalities
  • Reducing the numbers of people who smoke
  • Tackling obesity
  • Improving sexual health
  • Improving mental health well being
  • Reducing harm and encouraging sensible drinking
  • (DoH, 2005)

91
What physical health problems do people with SMI
/ LD experience?
  • People with SMI have higher morbidity and
    mortality rates
  • It is estimated that the life expectancy of
    people with schizophrenia is reduced by 10 years
    (Newman Bland, 1991) or more recently 25 years
    (Parks et al., 2006)
  • People with intellectual disabilities have an
    increased risk of early death compared to the
    general population (Hollins et al., 1998
    McGuigan et al., 1995).
  • People with Down's syndrome have a shorter life
    expectancy than people with intellectual
    disabilities generally, although the life
    expectancy of this group is increasing
    particularly quickly (Puri et al., 1995).

92
Higher rates of major diseases
  • The analysis of data on people with learning
    disabilities in Wales shows that
  • There is a much higher rate of obesity amongst
    people with learning disabilities (35, as
    compared with a general population figure of
    22). The figure for women with learning
    disabilities is particularly high at 40.
  • 9 of people with learning disabilities have
    diabetes, compared with 4 in the general
    population.

93
Higher rates of major diseases
  • People with bi-polar disorder, depression or
    schizophrenia have higher rates of
  • Diabetes more than 10 higher than the general
    population (Holt Peveler, 2006, Busche Holt,
    2004)
  • Cardiovascular disease 2-3 times higher than
    the general population (Brown et al., 2000 Osby
    et al., 2000)
  • Respiratory disease more likely to suffer
    asthma, chronic bronchitis and emphysema (Sokal
    et al., 2004)
  • Obesity Increasing evidence of higher rates of
    upper body obesity (Ryan Thakore, 2001)
  • Stroke
  • Cancers higher rates of digestive breast
    cancer (Schoos Cohen, 2003)

94
Higher rates of major diseases
  • People with schizophrenia
  • Twice as likely to have bowel cancer as other
    citizens (new finding internationally)
  • (Disability Rights Commission Formal
    Investigation Report 2006)

95
Causes ?
  • Health behaviours Smoking, diet, physical
    inactivity, alcohol substance misuse, sexual
    behaviour
  • Illness Symptoms, poor spontaneous reporting of
    physical health problems
  • Services not geared to meet peoples needs -
    Lack of knowledge, lack of training, attitudes,
    confidence, lack of integrated care
  • Adverse effects of medication Extrapyramidal
    side effects, weight gain, glucose intolerance
    diabetes, cardiovascular effects, sexual
    dysfunction, neuroleptic malignant syndrome
  • Environment Poverty, poor housing, social
    exclusion
  • Difficulties recognising symptoms
  • Barriers to accessing primary care
  • Communication barriers
  • Inequalities in screening treatment

96
Recommendations from the DRC Closing the gap
Report 2007
  • All professionals and organisations with a role
    in the provision of primary care health services
    to people with learning disabilities and/or
    mental health problems must act now to tackle the
    inequalities in physical health and primary
    health care services they experience
  • The planning and commissioning of primary care
    services for people with learning disabilities
    and/or mental health problems need to take
    greater account of their physical health care
    needs
  • Urgent and positive action is needed to
    ensurethat people with learning disabilities
    and/or mental health problems and their carers
    (and other support workers) where relevant know
    their rights in relation to physical health and
    the services to support this, and are able to
    take part or receive appropriate help in
    programmes geared to supporting them in managing
    their physical health conditions

97
Recommendations from the DRC Closing the gap
Report 2007
  • People with learning disabilities and/or mental
    health problems have a right to be registered
    with a GP and this needs to be made a reality
  • Everyone with learning disabilities and/or mental
    health problems under the active care of a
    psychiatrist should also have their physical
    health monitored by regular review from primary
    health care services, including a GP or other
    primary care practitioner
  • People with learning disabilities and/or mental
    health problems living in residential or nursing
    homes, in supported living arrangements, in
    prisons or in secure accommodation for young
    people should have equal access to a GP and
    access to options for healthy living
  • Services and equality schemes need to be put in
    place to ensure that people with learning
    disabilities and/or mental health problems who do
    not have easy access to a GP or experience
    exclusion on multiple grounds receive full and
    proper primary health care services

98
Recommendations from the DRC Closing the gap
Report 2007
  • GP practices and primary care centres need to
    make reasonable adjustments to make it easier
    for people with learning disabilities and/or
    mental health problems to get proper access to
    the services offered by the practice
  • People with learning disabilities and/or people
    with enduring mental health problems should be
    offered an annual check on their physical health
    by a primary care specialist and access to health
    interventions that fit the level of their health
    needs regardless of age
  • We recommend that people with learning
    disabilities and/or mental health problems should
    be offered accessible and appropriate support to
    encourage healthy living and overcome any
    physical health disadvantages which come with
    their condition or treatments administered for
    the condition including information, advice and
    support, in an accessible, relevant and targeted
    form, on how to quit smoking, on good diet, on
    sexual health, on alcohol, on street drugs and on
    physical exercise
  • There should be a comprehensive programme of
    evidence based training and information resources
    (the design and at least some of the delivery of
    which involves users and user groups) for primary
    health care staff

99
Initiatives
  • National Developments
  • Incentivised GP contract
  • Direct enhanced learning disability health check
  • WAG Department of Health and Social Services
    Equality Group
  • Local Developments (amongst others)
  • Embedded into Service philosophy ICM Policy
    Developed Reviewed in 2006
  • Physical health protocol development Developed
    in 2006
  • Well-being support programme 2 cohorts in 2007
    and a further 2 cohorts 2008 a further 2
    planned for early 2009
  • Care Co-ordinator training - ongoing
  • Unscheduled Care Project commenced mid 2007
  • Nutritional screening audit - 2007
  • Physical health protocol audit - 2007

100
Physical health protocol development
101
Well-being Support Programme
102
Supporting Health Promotion for Mental Health
Service Users Jan Batty
103
Jan BattyDevelopment WorkerMind Your
Heartjan.batty_at_nphs.wales.nhs.uktel. 01570
423957
104
True or False?
  • People with mental health problems are not
    interested in their physical health
  • Health promotion is not a priority in a 10
    minute GP appointment with people with mental
    health problems. Getting by day to day is often a
    major challenge for the people and support
    regarding this is a priority.
  • (Quoted in the Disability Rights Commission
    Report Equal Treatment Closing the Gap 2006)

105
  • People with severe mental illness want to look
    and feel well, no matter how long they have been
    ill and are not willing to compromise on either
    aspect
  • (Neuroleptic Weight Gain, Tweedell, Sutter,
    Dolan 2004)

106
  • Efforts directed at increasing activity levels,
    making healthier lifestyle choices and managing
    weight gain are highly valued by clients and they
    identify these efforts as important in their
    recovery.
  • (Mum I used to be good looking, look at me now,
    Dean, Todd, Morrow, Sheldon 2001)

107
Potential Obstacles
  • Lack of motivation
  • Effects of medication
  • Lack of money
  • Boredom
  • Mental health culture
  • Attitudes and beliefs of health staff

108
Mind Your Heart Programme
  • Our aim is to improve the physical health of
    mental health service users in Ceredigion by
  • Engaging people in activities that reduce their
    risks of illness
  • Removing obstacles
  • Raising awareness

109
What did we do?
  • Training for staff and volunteers
  • Small grants supported engagement in activities
  • Presentations and networking to raise awareness
  • Worked with Mental health voluntary
    organisations, Community Mental Health Teams and
    Afallon ward, Bronglais Hospital

110
Mind Your Heart Toolkit
111
What did we find?
  • Training led to changes in personal health
    behaviour of staff
  • Changes in culture
  • We introduced no smoking on our premises even
    before the ban was introduced and would not have
    done it without Mind Your Heart
  • (Staff member at drop-in)

112
What did we find?
  • Gave authority and legitimacy
  • I could back up information I was giving with
    factsI felt sure of what I was saying
  • (Staff member after Food and Mood training)

113
Conclusions
  • An effective, sustainable and efficient
    intervention
  • Promoting mental and physical health together is
    helpful
  • Working in partnership is crucial

114
Summary
  • People with mental health problems are interested
    in their physical health
  • Expectations of staff and lack of opportunities
    can hold them back
  • People can use healthier lifestyles to aid
    recovery

115
POSTER PRESENTATIONS Caroline Oakley
116
MAKING A DIFFERENCE !
117
Making a difference !
  • 10 minutes
  • key points from today that have made you think
    differently
  • 3 things that you will do differently

118
QUESTION TIME
119
Closing Remarks
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