ECHA Steering Commitee Meeting

1

• ECHA Steering Commitee Meeting
• January 17, 2004
• Update of the sampling ECHA-FRANCE

2
Sampling

• A. Clavel full time from oct 2003-15 feb 2004
• F. Balard partial time from oct 2003-sept
  2004
• Systematic method of sampling
• Contact (by phone) all nursing home and all
  physicians for a given geographic area to find
  proband child

3
Sampling method
4
Collected Data
5
Sex-distribution
6
Sex-distribution
7
Distribution by type of pairs
8
Concordant pairs

11 out of the 27 concordant families had 3 or
more sibs older than 90 years old
9
Place of birth

Probands' place of birth
10
Age distribution for children
11
Sampling - Perspectives

• Total number of subjects (jan 2004) 174
• A. Cl one month (15 feb 2004) 20-25
• F.B and A.C 20 subjects by month
• 6 months (june 2004) 120-130
• Total number of subjects (june 2004) 310-330
• Number of pairs 40-50