Making a Difference: Saving Lives

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Making a Difference Saving Lives
CLP Web Conference
May 27, 2008
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Presentation Objectives

• Walk away with 7 action items to strengthen your
  relationship with the American Cancer Society.
  
• Better understand your role and facilitating your
  facility's partnership with the American Cancer
  Society.
  
• Have an increased knowledge of ACS programs and
  be able to refer your patients to these services.

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The CoC and ACS Partnership

• The Commission on Cancer (CoC) and the American
  Cancer Society (ACS) have partnered together
  since the 1930s when they pursued a cooperative
  venture to establish standards for cancer
  clinics.
• ACS contributes to the support of
• National Cancer Data Base (NCDB)
• Cancer Liaison Program (CLP)
• Facility Information Profile System (FIPS)

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ACS Nationwide Leadership Roles
Addressing Disparities
Advocacy
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ACS 2015 Goals

• 50 Reduction in Age-adjusted Cancer Mortality
  
  
• Rates
• 25 Reduction in Age-adjusted Cancer Incidence
  
  
• Rates
• Measurable improvement in the quality of Life
  from the
  
• time of diagnosis and for the balance of
  life for all
  
• cancer survivors

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CoC Cancer Program Standards

• Standard 5.1
• Information about the availability of
  cancer-related clinical trials is provided to
  patients through a formal mechanism
  
• Standard 5.2
• As appropriate to the category, the required
  percentage of cases is accrued to cancer-related
  clinical trials on an annual basis
  
• Standard 6.1
• Supportive services are provided on site or
  coordinated with local agencies and facilities

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Role of the Cancer Liaison Physician

• Champion of the cancer program
• Liaison between the Commission on Cancer and the
  cancer program
  
• Agent of change in the community

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Cancer Liaison Physician Focus Areas

• Quality Improvement
• American Cancer Society Partnership
• Clinical Trials
• Advocacy
• Comprehensive Cancer Control

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American Cancer Society Partnership

• Bring ACS staff to the cancer committee table and
  facilitate ACS interaction with the cancer
  program staff.

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American Cancer Society Partnership

• Schedule a meeting with ACS staff
• Establish the ACS staff role on the committee
• Ask ACS to present activities/programs to the
  cancer committee
  
• Discuss partnership opportunities
• Establish a referral process for services offered
  outside of the facility
  
• Discuss patient navigation

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Advocacy

• Work with the American Cancer Society Cancer
  Action Network (ACS-CAN) in the area of
  legislative and regulatory advocacy.

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Advocacy

• Log on to the ACS CAN Web site www.acscan.org and
  register as a new member
  
• Share legislative updates and action alerts sent
  via e-mail with other facility staff
  
• Use the available templates to write a letter to
  your elected official
  
• Attend a public hearing/testify as content
  expert
  
• Become a Celebration on the Hill Ambassador

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2008 CLP Activity

• Focus Areas
• 54 Bring ACS staff to the cancer committee
• 14 Present state cancer plan to cancer
  committee
  
• 45Facilitate utilization of NCDB e-QuIP
• 13 Work with ACS CAN in area of legislative and
  regulatory advocacy
  
• 46 Increase enrollment in clinical trials

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CLP 2007 Activity

• Collaborations with ACS
• 70 Facilitating community outreach
• 44 Defining menu of ACS services
• 40 Medical spokesperson
• 37 Assist in community assessment
• 33 Participate in fund-raising activities
• 9 Do not collaborate with ACS
• 73 ACS representatives participate on cancer
  committee
  

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Together, we can improve the quality of life
of cancer patients by

• Helping patients and caregivers navigate the
  cancer experience
  
• Ensure that patients receive the help and support
  they need by
  
• referring them to appropriate community
  resources
  
• directly providing high-quality programs and
  services
  
• influencing communities to invest in these
  services
  

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Market Research

• Research conducted in Dallas and Atlanta
• Eight focus groups underserved cancer patients,
  nurses, social workers
  
• Focused on underserved, underinsured, low
  literacy audiences
  

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Ive been told I have cancer
Will I have side effects from the
treatment?What will my life be like now?Do
I have any say in how I will be treated?
Can I be cured?
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Cancer Resource Network

• Umbrella name for the Societys programs and
  services, which include
  
• - providing relevant cancer information
• - connecting patients and caregivers
  with ACS services
  
• - providing referrals to external
  resources
  
• Focus on reaching newly-diagnosed patients,
  specifically
  
• those who are medically
• underserved

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Market Research Healthcare Professionals

• Marketing material should be direct and to the
  point
  
• Need a better understanding of what the Society
  offers
  
• Dont have much time to help with patients
  non-medical needs
  
• Improve ease of referral process

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Market Research Patients

• Programs and services should be described based
  on
  
• needs, ie transportation, lodging, etc.
  
  
• An emotional statement rather than factual
  headline
  
• will grab their attention
• ACS 1-800 number and web address should be in
• large print and easy to read.
• Use range of photos ethnicity, age, gender,
• and socioeconomic groups to ensure everyone
  feels included.

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Positioning Healthcare Professionals

• While your focus is on your patients disease
  and medical
  
• treatment, the ACS Cancer Resource Network
  can improve
  
• their quality of life with
• Free resources to help cancer patients with full
  
  
• spectrum f non-clinical needs
• Information to help patients understand their
• disease and make informed treatment decisions
  
  
• with health care professional
• Help address cancer patients day-to-day
  concerns
  

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Positioning Patients

• Having cancer is hard. Finding help
  shouldnt be. No matter what you need, the
  American Cancer Society can help.
  

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The Cancer Resource Network

• Is an easy way to refer to the full spectrum of
  support offered by the ACS. The goal of CRN is to
  reach more newly diagnosed patients, with a focus
  on the medically underserved.

Information for your patients and their families
Helpful guidance for your patients day-to-day
lives
Caring emotional support for your patients
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Cancer Resource Network
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Information
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• Information

Patient and healthcare provider materials are de
signed to give an easy-to-read
overview of support and resources available thro
ugh the American Cancer Society.
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www.cancer.org

• American Cancer Society Web Site

• Current information about cancer
• NCCN Treatment Guidelines
• CoC Hospital Locator
• Local Resources both ACS and other
• resources
• Clinical Trials Matching Service

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National Cancer Information Center

• 1-800-227-2345
• Open 365 days per year,
• 24 hours a day
• Over 1 million calls per year!
• Cancer Information Specialists use
• national database to provide high quality
  information,
  
• services, and referrals to ACS and other
  community resources
  
• Reaching people with cancer information and
  resources
  

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Clinical Trials Matching Service

• TrialCheck, the nations premier searchable
  database for cancer clinical trials, available
  www.cancer.org National Cancer Information
  Center (NCIC)
• Developed by Coalition of Cancer Cooperative
• Groups with 8,000 researchers 2,000
• practices nationwide
• Real-time updates
• Clinical Trials Specialists at available Monday
  Friday, 730 am 700 pm CT.

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CoC Hospital Locator

• Database of all CoC hospitals
• Patients can search by city and zip
• Review the cancer care services offered at each
  facility
  

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Local Resources

• Find local programs and support services from
  ACS and other organizations
  
• Search all categories or select specific resource
  areas

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Day-to-Day Help
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Emotional Support
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Cancer Resource Network
Emotional Support
Managing Day-to-Day
Information Referrals

• 1-800-227-2345
• www.cancer.org
• Clinical Trials Matching Services
• Patient Navigator

Look GoodFeel Better Reach to Recovery Man to M
an
I Can Cope Cancer Survivors Network
Financial Assistance Insurance Matters Transport
ation - Road to Recovery Hope Lodge Patient Navi
gator

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How Can Your Local ACS Staff Help?

• Invite your ACS staff partner to present ACS
  offerings at an upcoming Cancer Committee
  meeting.
  
• Your ACS staff can recommend a efficient process
  for hospital staff and physicians to refer
  patients to ACS for assistance.

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Together, we can do more for the patients
we serve.
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Questions?
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Action Items

• Call your local ACS representative
• Invite to participate on cancer committee
• Learn what local services are available and share
  with the cancer committee
  
• Develop outreach goals in connection with the
  ACS
  
• Reserve a spot on the cancer committee agenda for
  ACS items

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Action Items
6. Ask the ACS to provide a report to the cancer
committee on current and future activities
7. Present American Cancer Society Cancer Action
Network to the cancer committee and solicit
membership
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Contact Us!

• Jon M. Greif, DO
• greif.jon_at_comcast.net/510.883.1095
• Aaron D. Bleznak, MD
• aaron.bleznak_at_lvh.com/610.402.5498
• Kate Phair, MPH
• kphair_at_facs.org/312.202.5529
• Carolyn Jones
• Cjones_at_facs.org/312.202.5183