Summary Care Record

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Summary Care Record
Mike DavisNHS Connecting For HealthSummary Care
Record Programme
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The Summary Care Record
Strategic Objective To ensure that patients can
be confident that the NHS professionals caring
for them have reliable and rapid access, 24 hours
a day, to the relevant personal information
necessary to support their care Information
for Health, An Information Strategy for the
Modern NHS, 1998 2005, DOH

• Summary Care Record What is it
• An electronic summary of key health information
  available to any NHS healthcare professional
  treating a patient in England
• Particularly crucial in out of hours unscheduled
  care settings
• It will hold limited essential information
  derived from the patients electronic medical
  records
• Medication
• Allergies
• Significant medical history

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The Summary Care Record
Summary Care Record Vision The NHS Summary Care
Record will support unscheduled care settings,
providing information to support care where no
information is currently held about a patient,
for example in emergency departments, primary
care out-of-hours settings, treating temporary
residents, and emergency admissions to secondary
care.

• Principles
• Will remain a Summary Record
• Contains only significant aspects of a persons
  care
• Accumulates new key items of the persons care as
  time goes by
• Derived from records of organisations delivering
  care to that patient
• Initially populated by General Practice
  contribution
• Patients can see the record via HealthSpace

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What about all the controversy?

• Can patients refuse to have a summary?
• Yes !
• Can patients change their minds at any stage?
• Yes!
• Can patients limit what is shared?
• Yes!

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Populating the Record

• Implied consent model
• Public information leaflet to patients with
  plenty of notice of what is happening and their
  options
• Opportunity to find out more and refuse to have
  SCR if that is their wish
• Letters customised and sent to every adult over
  16
• Dedicated Care Records Service Information Line
• Local Information Centres for more information
  and demonstrations
• Local input into voluntary organisations and
  difficult to reach communities

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Accessing the Record

• All access is governed by Role Based Access
• Controls through Smartcards
• Out of Hours
• Ensuring smooth access to SCR in busy settings
• A/E
• As critical mass of patients on line enabling
  access
• Community Settings
• Enabling mobile access to SCR with IG controls
• Caldicott Guardians
• Ensuring that the tools provided for them are
  appropriate for their needs

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Professional and contractual controls
Clooney hospital punishes staff
"We believe this is a harsh penalty and an
overreaction" Jeanne Oterson, spokeswoman for
the Health Professionals and Allied Employees
Union
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HealthSpace

• Secure website for patients to record their own
  health information
• Enables patients to access their Summary Care
  Record
• Patients can view their consent status
• Resultant change in dynamic of service delivery
• Potential of coded entries to hyperlink to
  knowledge support and leaflets
• Partnership between patients and clinicians in
  management of care

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The Early Adopter Programme

• Six Primary Care Trusts engaged totalling 2
  Million potential records
• 10 technology
• 90
• Business change
• Understanding
• Growing in confidence
• Independent Evaluation by University College
  London

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Patient Feedback

• 500,000 patients mailed so far and over 100,000
  records loaded to the Spine
• Information Line and Information Centres were
  quiet
• 0.60 of patients do not want a Summary Care
  Record
• Most patients thought that electronic sharing was
  already in place and want the NHS to get on with
  it
• Main area of concern was security but patients
  satisfied with controls in place
• Patients very keen on accessing their records
  through HealthSpace

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See the System in Action

• Workshop session before and after lunch providing
  a walkthrough of the system
• HealthSpace demonstration
• QA on the Summary Care Record

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Thank You
Mike DavisNHS Connecting For HealthSummary Care
Record Programme