Pennsylvania

1
Pennsylvania Medical Home Initiative EPIC IC
Renee Turchi, MD, MPH, EPIC IC, PA Chapter
AAP Molly Gatto, EPIC IC, PA Chapter AAP
MCHB Forum June 24 25, 2008
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Parent Partners
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Engagement of Parent Partners

• Practices recruit Parent Partners through
• Focus Groups
• Resource Nights
• Individual Invitation

4
Focus Groups

• Small group of parents invited to participate
• Provide overview of MHI
• Discuss positive aspects of the practice
• Specific attention is given to
• scheduling
• call backs
• referral process
• on-call protocol

5
Resource Night

• Held at practice or local hall
• Planned by the practice team in conjunction with
  several parents
• Can be specific to a diagnosis
• Local resources have included
• Parent to Parent
• MH/MR
• Early Intervention
• Make a Wish
• Parent Education Network

6
Lessons Learned

• Practices need several Parent Partners
• Practices need to be shown the value of Parent
  Partners
• Practices need support to engage and retain
  Parent Partners
• Parents become more engaged when they are
  responsible for development of things like
• resource bulletin boards
• newsletters
• parent to parent support

7
EPIC IC Medical Home SurveyDomains

• Areas measured on the survey include
• Components of the Medical Home
• Accessibility
• Parental satisfaction/trust
• Health care utilization
• Unmet medical needs
• Demographic information

8
EPIC ICs Improvements

• Reimbursing parents to attend practice team
  meetings
• Reimbursing for childcare costs to attend
  bi-yearly conferences
• More hands-on help to practices to engage and
  retain parent partners

9
EPIC ICs Improvements

• Development of a parents section on our website
  (under construction)
• Conference calls with just Parent Partners
• Topics at conferences that are applicable to
  parents
• Development of a social networking site on the
  parent section of the website (under
  construction)

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www.pamedicalhome.org
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Thank you!

• Grant support
• Maternal Child Health Bureau
• PA Department of Health
• PA AAP
• Pediatric Practices in EPIC IC
• Children/youths and their families

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Contact information

• Renee Turchi, MD, MPH
• St. Christophers Hospital for Children,
  Philadelphia, PA
• 215-427-5331
• renee.turchi_at_drexelmed.edu
• Molly Gatto
• PA Chapter, American Academy of Pediatrics,
  Media, PA
• 484-446-3039
• mgatto_at_paaap.org