KIN CANADA

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KIN CANADA THE CANADIAN CYSTIC FIBROSIS
FOUNDATION
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The Canadian Cystic Fibrosis Foundation

• Canada is a world leader in cystic fibrosis
  research and treatment, with the support of the
  Canadian Cystic Fibrosis Foundation (CCFF) and
  its partners.
• Cystic fibrosis (CF) is the most common, fatal
  genetic disease affecting young Canadians.
• In the 1930s, cystic fibrosis was usually
  recognized only after a child had died, often as
  a result of malnutrition or pneumonia.

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Objective of the Partnership

• The CCFF works with Kin Canada, to meet a set of
  mutually beneficial goals and objectives.
• To raise funds for the fight against cystic
  fibrosis
• To increase profile for Kin Canada as an
  organization and as individual members serving
  the communitys greatest need
• To maximize Kin and CCFF volunteer opportunities.

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History of the Kin-CCFF Partnership

• Dr. Douglas Crozier, then Director of the CF
  Clinic at The Hospital for Sick Children, and
  District 8 Kinsman Bill Skelly initiated a
  friendship that has since grown into a committed
  41 year partnership.
• 1960 The CCFF receives its Letters of Patent,
  and is officially incorporated a child with CF
  is not expected to live long enough to attend
  kindergarten.
• 1964 Kin District 8 formally recognizes the
  fight against CF as its District Service Project.
  
• 1974 The Hospital for Sick Children in Toronto
  creates the Kinsmen CF Research Centre, in
  recognition of Kin Canadas contribution to the
  CF cause.
• 1987 Kinsmen and Kinette Clubs adopt the fight
  against CF as a National Service Project.

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History of the Kin-CCFF Partnership

• 1989 Researchers at Torontos Hospital for Sick
  Children discovered the gene responsible for CF.
• 1997 Kin members reach a milestone when total
  funds raised for the CCFF surpass to 25 million.
  
• 2003 Kin Canada holds the first annual National
  Kin-CF Day in support of the CCFF.
• 2004 Kin Canada and the CCFF celebrate the 40th
  anniversary of their partnership the median age
  for a Canadian with CF reaches 37 years of age.
• To date, Kinsmen and Kinettes have raised more
  than 35 million in support of the fight against
  cystic fibrosis in Canada. The median age of a
  person with Cystic Fibrosis is 35. That is one
  year for every 1million donated by Kin.

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Distribution of Funds

• Donations to the CCFF help fund programs that
  benefit all Canadians with cystic fibrosis.
• Longer and healthier lives Today, half of all
  Canadians with CF may expect to live to 37 years
  of age or even longer
• Development of new therapies Canadian
  scientists are providing world leadership in the
  development and testing of new therapies for
  those with CF
• Access to care The CCFF provides supplementary
  funding for 38 clinics, four transplant centres
  and CF outreach clinics in remote/rural areas of
  Canada
• Advocacy The CCFF undertakes advocacy
  initiatives with, and on behalf of, Canadians
  with CF, to enhance their quality of life
• Education CCFF publications provide
  information to individuals and families affected
  by CF, and to members of the public

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District Contributions
Ten Year Average

• District 1 334,440
• District 2 106,920
• District 3 20,364
• District 4 123,820
• District 5 39,151
• District 6 131,990
• District 7 85,498
• District 8 233,707
• Our 2007-2008 District 4 goal is 135,000

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National Kin-CF Day

• National Kin-CF Day, held annually on the first
  Saturday in May, was designed to highlight the
  long-standing partnership between Kin volunteers
  and the Foundation.
• This nation wide event aims to simultaneously
  advance public awareness of both Kin Canada and
  the fight against CF
• Clubs, Zones and Districts are encouraged to
  participate in this National day, by organizing a
  no sweat fundraiser in support of the CCFF

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CCFF Fundraisers
Join the CF community and its supporters on the
Last Sunday of May and take steps to cure
CF. The FrightLites campaign is the
national signature fundraising event of the
Canadian Cystic Fibrosis Foundation (CCFF).
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Kin-ODAC

• Kin Organ Donor Awareness Program Campaign
  (Kin-ODAC) was established in 2001 at National
  Convention to improve Kin education on issues of
  concern and importance to organ donation across
  Canada, and then to extend that education
  throughout our communities.
• This partnership with the Organ Donor Program is
  in fact an extension of our partnership with the
  Canadian Cystic Fibrosis Foundation.
• Organ donation can mean the difference between
  life and death for many people. For others, it
  represents a total transformation in their
  quality of life.
• Discuss Organ Donation with your loved ones.

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Useful Resources

• Kin has many useful resources available for
  members to use when planning a local fundraiser.
• Kin Canada Web Site
• www.kincanada.ca
• User Name kinmember
• Password Hal1920
• KinCCFF Extranet
• www.ccff.ca
• User Name KIN
• Password CANADA
• District 1 Web Site
• www.district1kin.ca

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District Fundraisers

• District Convention Silent Auctions
• Club Donations are requested and very much
  appreciated
• Pin Sales
• District CF pins are available for sale for 5
• Kin Komfort Klub
• District 4 Dream Golf Raffle

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• Thank you Kin