Clinical Advances in the Treatment of Atrophic Vaginitis

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Continence Promotion Prevention, Education
Organization
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Louis Denis Ilan Gruenwald Chye Hua
Ee Richard Millard Richard RobertsCarolyn
SampselleKatherine Williams Diane Newman -
Chair
Continence Promotion Prevention, Education
Organization
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Continence Promotion Prevention, Education
Organization
Promoting Awareness

• Primary Prevention
• Education
• Consumer/Public
• Professional
• Organizations
• Delivery of Continence Care Services
• National

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National Organizations 2003-4 ICI Survey

• Background
• Survey undertaken and reported _at_ 1st ICI
• Obtained organizations from 2 sources
• 2nd ICI report
• ICS Continence Promotion Committee (CPC) website
• Survey in English (American)

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National Organizations 2003-4 ICI Survey

• Survey
• 31 questions plus contact information
• Started distribution in 2003
• Faxed, emailed on 6 occasions to 38 organizations
  in 29 countries

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National Organizations Survey Results

• AUSTRALIA AUSTRIA (New) BELGIUM
• BRAZIL (New) CANADA COLOMBIA (New)
• CZECH REPUBLIC (New) DENMARK (New) GERMANY
• CHINA HUNGARY (New) INDIA
• INDONESIA ISRAEL ITALY
• JAPAN KOREA MALAYSIA
• NETHERLANDS NEW ZEALAND NORWAY
• PHILIPPINES POLAND (New) SINGAPORE
• SWEDEN TAIWAN THAILAND
• UNITED KINGDOM (4) UNITED STATES (4)

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National Organizations Survey Results

• Survey Results
• Number respondents N 24 ( 66.7 return)
• Number of countries responding N 19
• Structure
• 12 organizations established for more than 10
  years
• Only 2 DO NOT have an advisory board
• Memberships
• Professionals
• Lay public ( 4 organizations gt 50
  representation)
• Employees
• 12 organization have between 1 and 10 employees
• 4 organizations have 11 40 employees

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National Organizations Survey Results

• Mission
• Educate consumers/lay public
• Promote continence via public education
• Educate healthcare professionals
• Advocate for consumer/lay public
• Influence policy

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National Organizations Survey Results

• Disorders they cover
• Urinary incontinence (all)
• Other
• Bowel (IFFGD - USA)
• Interstitial cystitis/chronic pelvic pain
• Childhood enuresis (ERIC UK)

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National Organizations Survey Results

• Do they survey membership?
• 4 have conducted surveys
• 2 have published results

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National Organizations Survey Results

• Sources of Funding
• Members
• Charity
• Government
• 3 organizations - 30, 35 and 90
• Little interest
• Education grants 11 organizations
• Industry Most rely on this

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The National Continence Management Strategy
Information bookletOutside evaluation
Australia
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National Continence Management StrategyAustralia

• Australian Government
• 31 million - 1998 to 2006
• Improve continence awareness, treatment and
  management
• Mission
• Preventative strategies and health promotion
  initiatives
• Reduce admission to aged care homes by improving
  the treatment and management of incontinence in
  older Australians
• Promote good practice in continence care among
  all health professionals.

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National Organizations Survey Results

• Publicity Awareness - Themes
• Little understanding of problem(s) by public
• Media coverage is poor
• Sponsored
• National Public Awareness Campaigns
• Health Promotion Projects
• Health Fairs

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National Organizations Survey Results

• Publicity Awareness - Themes
• Quantification of program outcomes/impact
• Articles in newspapers 279
• Poland reported highest number
• ERIC highest number in TV 20
• Other methods used to determine impact
• Increase in calls to National Helpline
• Increase in hits to website
• 200 million impressions of Public Service
  Announcements

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National Organizations Survey Results

• Publicity Awareness - Themes
• Experiences learned
• Important to perceive needs of target audience
• Public still embarrassed about issue
• Bowel incontinence remains a significant taboo
• Need to increase public awareness starting in
  childhood years

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National Organizations Survey Results

• Survey Problems
• Too long
• Language
• Incorrect information from source

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OrganizationsRecommendations

• Repeat survey to keep information on National
  Organizations current (consider ICS-CPC perform
  year survey)
• Worldwide Resource Center
• Establish continuing government and commercial
  support
• Independently evaluate programs and material