Title: Dr%20Deepak%20Kejariwal%20Consultant%20Physician
1Inpatient care and inpatient experience of adults
with ulcerative colitis in the UK
2Introduction to the IBD programmeImproving the
care of people with IBD
- Five elements, 20122014
- Inpatient care (1 Jan 31 Dec 2013)
- Assesses the treatment that a patient receives
when admitted to hospital. Each hospital
participating in the audit collects information
on the first 50 patients admitted with ulcerative
colitis in 2013. - Inpatient experience (1 Jan 2013 31 Jan 2014)
- Assesses the quality of patient care. Each
patient included in the inpatient care audit is
given a questionnaire when they leave hospital.
They can comment on the care that they received
and how this made them feel. - Biological therapy audit (continuous audit)
- Collects information about treatment, delivery,
disease activity and quality of life in patients
who are prescribed infliximab or adalimumab for
IBD.
3Introduction to the IBD programmeImproving the
care of people with IBD
- Five elements, 20122014
- Organisational audit and quality improvement tool
IBDQIP (1 Feb 31 March 2014) - A web-based self-assessment that enables
hospitals to measure their organisation of care
compared with national service standards. The
tool identifies areas for improvement and
facilitates change. - Quality improvement peer support visits
- A series of visits where hospitals are paired up
and meet to compare results and identify methods
for improving the quality of care for patients.
The IBD programme team supports the clinical
teams to share best practice and explore new ways
of working.
4Methodology
- Prospective patient identification
- Ulcerative colitis (UC)
- Reduced dataset
- Up to 50 audited admissions per site
Inclusion criteria Exclusion criteria
Patients admitted for treatment or surgery for UC (including newly diagnosed patients) Primary reason for admission was not for treatment of UC
Patients any age A day case (for an infusion, endoscopy or day surgery procedure)
Patients admitted for longer than 24 hours If the patient stayed overnight but was discharged within 24 hours of admission
Multiple admissions included
5Participation in inpatient care
- 1 January 2013 1 December 2013
- 95 (154/162) adult trusts/ health boards that
were eligible to take part - 190 hospital sites took part
- 4359 patients/admissions were audited
- 28 Ulcerative Colitis admissions at University
Hospital of North Durham
6Key indicators for inpatient care
Key indicators round 4 National results UHND results
Mortality death during admission 0.85 (37/4359) 0 (0/28)
Previous admission in the past 2 years (among emergency and planned admissions for active UC and restricted to first admission only) 31 (854/2778) 21 (3/14)
Active UC admissions and no UC medication on admission (excludes new diagnoses) 11 (352/3065) 7 (1/14)
Seen by IBD nurse (among emergency admissions) 49 (1657/3410) 40 (8/20)
Stool samples sent for SSC and CDT (among emergency admissions where the patient had diarrhoea) SSC 80 (2060/2565) CDT 76 (1940/2565) SSC 94 (16/17) CDT 82 (14/17)
7Key indicators for inpatient care
Key indicators round 4 National results UHND results
Positive stool sample SSC 3 (57/2060) CDT 4 (79/1940) SSC 13 (2/16) CDT 21 (3/14)
Nutritional screening during admissiona 82 (3566/4359) 100 (28/28)
Seen by a dietitian during admissiona 40 (1449/3635) 93 (25/27)
Prophylactic heparin prescribed (excluding elective surgical admission) 90 (3560/3952) 95 (20/21)
Ciclosporin/anti-TNFa prescribed following failure to respond to corticosteroids Ciclosporin 22 (268/1226) Anti-TNFa 42 (519/1226) Ciclosporin 25 (2/8) Anti-TNFa 13 (1/8)
a Excludes from the denominator admissions that
were not applicable to the question
8Key indicators for inpatient care
Key indicators round 4 National results Your site results
Response to ciclosporin/anti-TNFa treatmenta Ciclosporin 73 (195/268) Anti-TNFa 84 (437/519) Ciclosporin 50 (1/2) Anti-TNFa 100 (1/1)
Surgery during admission among non-elective surgical admissions 12 (442/3784) 38 (8/21)
Bone protection prescribed when discharged home on steroids 74 (2553/3448) 70 (14/20)
Medication(s) not started or increased in the clinic appointment prior to admission. Includes 5-ASA, steroid, topical or immunosuppressant therapy (among admissions where the patient had active UC at their last clinic appointment and were not admitted to hospital) 42 (556/1329) 50 (4/8)
a Response to treatment is defined as not having
had surgery and not having died during admission
9Patients who had surgery
- 8 patients who had surgery
- 2 patients were semi-elective proctectomy (wrong
coding) - 2 failed ciclosporin
- 1 prev Aza pancreatitis, on MMF for sarcoidosis-
so appropriate - 1- not discussed in MDT
- 2 notes not available
10Case 1- Not discussed in MDT
- Admitted Apr 2013 (on Monday)
- Bloody Diarrhoea 16times a day and abd pain,
raised CRP Diag- IBD. Plan- stool culture and
AXR - D3- Hb-7- Transfused 2 units
- D4- FS- Colitis. Started on IV Hydrocortisone by
gastro - D6- Hb 7- transfused 3 units
- D8- ? Ciclosporin.
- D9- D/w Gastro. Felt inappropriate as CT showed ?
Splenic abscess
11Key indicators for inpatient care
Key indicators round 4 National results UHND results
No steroid-sparing therapies tried for patients on steroids gt3 months (Q6.2.2 d) 22 (151/684) 33 (2/6)
No treatment provided for iron deficiency (Q6.3.3) 56 (783/1406) 57 (4/7)
12Outcomes of treatment escalation in UC
13Inpatient care audit recommendations
- All outpatients with UC should have their disease
activity accurately assessed (eg using symptoms
and faecal calprotectin), and treatment should be
initiated or escalated in those with active
disease. Early intervention may prevent
admission. - All patients with a new diagnosis of UC, those
for whom the use of anti-TNFa is considered and
those requiring additional information should be
seen by an IBD nurse during admission. - IBD services should ensure that inpatient IBD
care provided by the IBD nurse is appropriately
resourced in line with IBD Standard A1 (1.5
whole-time equivalent nurse per 250,000
population). - All IBD patients admitted to hospital should be
weighed and their nutritional needs assessed, in
line with IBD Standard A10. - Bone protection should be prescribed to all
patients with UC who receive corticosteroids.
14Inpatient care audit recommendations
- Heparin should be given to all patients for whom
it is not contraindicated, to reduce the risk of
thromboembolism. - All patients on steroids for longer than 3 months
should be considered for steroid-sparing agents
such as azathioprine. - Anaemia should be actively investigated, and the
cause should be identified and treated
appropriately. - Further national audit in IBD should be
commissioned.
15Participation in inpatient experience
- 1 January 2013 31 January 2014
- 154/162 (95) trusts/health boards
- 190 hospitals
- 1687 questionnaires returned (1550 included in
national analysis) - UHND 13 questionnaires returned
16Key indicators for inpatient experience
Key indicators round 4 National results UHND results
Overall how would you rate the care you received? Excellent 47 (690/1475) Excellent 54 (7/13)
Did you have confidence and trust in the doctors treating you? Yes, always 75 (1098/1470) Yes, always 77 (10/13)
Did the patient receive a visit from a specialist nurse? No 28 (417/1471) No 15 (2/13)
Was the patient visited by a dietitian? No 62 (915/1476) No 69 (9/13)
Were you ever in pain? Yes 78 (1154/1478) Yes 77 (10/13)
Do you think the hospital staff did everything the could to control your pain? Yes, definitely 66 (763/1148) Yes, definitely 90 (9/10)
17Key indicators for inpatient experience
Key indicators round 4 National results UHND results
In your opinion how clean was the hospital room or ward you were in? Very clean 62 (914/1473) Very clean 77 (10/13)
How would you rate how well the doctors and nurses worked together? Excellent 40 (584/1472) Excellent 38 (5/13)
Did a member of staff tell you about any danger signals you should watch out for after you went home? No 33 (477/1466) No 54 (7/13)
Do you feel that you received enough information from the hospital on how to manage your condition after your discharge? Yes, definitely 47 (683/1454) Yes, definitely 83 (10/12)
Would you recommend this hospital to your family and friends? Yes, definitely 62 (910/1465) Yes, definitely 69 (9/13)
18Patient experience across core domains of acute
inpatient care
19Inpatient experience quotes
20Inpatient experience quotes
21Inpatient experience recommendations
- All UC inpatients should receive input from
specialist multidisciplinary teams with
experience of managing such complex disorders.
This will maximise the opportunity for provision
of consistent and coordinated care. - Local IBD teams should consider whether the
general nursing staff have sufficient awareness
and knowledge of IBD, and initiate appropriate
educational interventions and care pathways to
support high-quality nursing. The routine
involvement of specialist IBD nurses in the
day-to-day care of IBD patients at ward level is
seen as a potential driver to improve the overall
experience of nursing care. - All admitted patients with active UC require
routine documentation of nutritional intake and
weight. Nursing care plans should identify
nutrition as a key element of day-to-day care.
Food provided should be appropriate to patients
dietary needs. Standard A5 of the IBD standards1
states that access to a dietitian should be
available to all IBD patients.
1 IBD Standards Group. Standards for the
healthcare of people who have inflammatory bowel
disease (IBD Standards), 2013 update.
www.ibdstandards.org.uk
22Inpatient experience recommendations
- Ward medical and nursing teams should review
their local policies and current practice with
regard to the frequency and effectiveness of pain
assessment and provision of analgesia. - Discharge policies for IBD patients require local
review to ensure that patients receive
high-quality pre-discharge information regarding
medication, self-care and follow-up plans. In
particular, improvements are needed in the
provision of information about potential drug
side effects and the warning signs of which to be
aware after discharge.
23Your three key areas for local change
Local key area identified What action is needed to facilitate this change? Who will be responsible? How and when will you review this action?
1. Treatment of anaemia Write local treatment algorithm and circulate to MDT Consultant gastroenterologist and IBD nurse Sep 2014
2.
3.
24Acknowledgements
- Thank you to all the hospital-based staff who
contributed towards case note retrieval and data
collection, and distributed the inpatient
experience questionnaires. - For further information, contact
- ibd.audit_at_rcplondon.ac.uk